HLHS
Resources
| Support | Research | Kids
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| Parents Support Groups | Hospitals
| Angels |
Here are some helpful links for parents of HLHS kids:
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The Childrens Health Information Network - Congenital Heart Disease Information and Resources, including various e-mail listservs. To sign up for the HLHS listserv, an online support group and discussion forum for families of children with HLHS and interested health professionals, send an e-mail to join-hlhs@lyris.tchin.org. For general heart defect discussion group, see pdheart at tchin. |
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"Left Heart Matters," the website for a British charity dedicated to HLHS. Includes links to support groups and other organizations, and webpages and contact info for other HLHS kids. |
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visit websites for over 70 heart kids on the CHD webring. |
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HLHS at pediheart.org. |
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Babyheartspress includes online books such as HLHS: A Handbook for Parents. |
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some of the many HLHS kids: Philip, Jaedin, Jeffrey, Corey, Joshua, James, Kyle, Sadie (more to come...) |
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Join us in recognizing February 14, 2002 as "A Day for Hearts: Congenital Heart Defect Awareness Day."
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